Brighton Festival 2017Public booking opens: Fri 24 Feb, 9am

Guest Blog: Montefiore Meets Biscuitland

What to make of a show that asks you to view a neurological disorder/disability, as a 'superpower'? Well Jess Thom wants you to know that Tourette's is what makes her special and she's changing the world 'one tic at a time' and has turned her tics into some riotous entertainment.

The show, Backstage in Biscuit Land, is a mini-guide into the life of Jess who lives with the tics and outbursts caused by the syndrome. The lazy language of writing about disease wanted me to instantly nominate Jess as a Tourette's 'sufferer' but there was not much suffering on display during an anarchic show in which Jess and her co-performer Jess Mabel-Jones (known throughout as 'Chopin') told us about Jess's life.

Her Tourette's required no description. Her vocal tic of 'biscuit' and repetitive chest beating were on clear display throughout and cleverly incorporated into the show. At times it was difficult to tell whether what we were hearing was an inventive script or a new tic. As a show it more resembled Vic Reeves at his most absurd than a medical documentary.Tourette's is a neurological disorder that has become a lazy comic shorthand for scatological and offensive behaviour. Backstage in Biscuit Land trod a fine line in both debunking and reinforcing that view. Whilst we laughed at Jess's disinhibited and furiously inventive swearing, we were also educated as she explained that only 10% of those with the syndrome will swear in this way. We also sympathised as she explained that the same behaviour which had brought her to the theatre as performer had also seen her turned away from theatres as an audience member.

The context was important but dislocating. Her behaviours were exhibited prominently and for comic effect; seeing Jess massacre a plate of strawberries on a stage in a show was hilarious but seeing the same thing unprepared in a communal dining experience might be terrifying. The medic in me wanted to know what short circuit in neurological wiring led to this, whether she hurt her chest and why she was getting worse (a fact that was signified by a comedic love letter to her wheelchair).

In the middle of all the hilarious insanity of free biscuits, songs about bestiality and hedgehog finger puppets, we were pulled up short when an audience member was asked to read Jess's care plan in the event of her tics culminating in a full-blown seizure (a common event). As the seizure was superbly enacted by Chopin's puppetry the volunteer struggled to read the banal medical algorithm (with its' litany of safety and diazepam) without shedding a tear. The theatre was silent but for Jess's own unavoidable interruptions. In that moment we saw that in sharing her superpower with us Jess was also allowing us the privilege of seeing her vulnerability.

As 'Touretteshero” Jess has positively incorporated her disease into her reality in a way that many of us could never do. Her resilience and humour in the face of being different is a lesson for us all.

By Richard Simcock, Consultant Oncologist, Montefiore Hospital.
The Montefiore Hospital working in partnership with Brighton Dome & Brighton Festival, supporting community wellbeing via the arts.